Official Online Resource of the Susan G. Komen Breast Cancer Foundation - www.komen.org
Official Toll-free Breast Care Helpline 1-877 GO KOMEN
(1-877-465-6636)
9 am - 5 pm Central Standard Time
Monday - Friday
TDD available
Se habla espanol
The following organizations represent just some of the major national breast cancer organizations. By listing the following institutions as resources, the Susan G. Komen Breast Cancer Foundation Mid-Kansas Affiliate does not intend to recommend them over any others. If you would like us to consider including a national breast cancer resource not listed or to add or update information not included in the current listing, please e-mail ?.
AMC Cancer Research Center
1600 Pierce Street
Denver, CO 80214
1-800-321-1557
www.amc.org
AMC Cancer Research Center is a not-for-profit research institute dedicated to the prevention of cancer and other chronic diseases. AMC is conducting important cancer research in the areas of causation and prevention, nutrition in the prevention of disease, health communications, behavioral research, and community studies.
American Cancer Society
National Office
1599 Clifton Road, NE
Atlanta, GA 30329
1-800-ACS-2345
www.cancer.org
The American Cancer Society is a nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service. The Society is headquartered in Atlanta, Georgia, with state Divisions in more than 3,400 local Units. The American Cancer Society is the largest source of private, nonprofit cancer research funds in the United States. Some of the Society's patient service programs include transportation, “Reach to Recovery,” “Look Good...Feel Better,” and “I Can Cope.”
American College of Radiology
1891 Preston White Drive
Reston, VA 20191
1-800-ACR-LINE
www.acr.org
The purpose of the ACR is to advance the science of radiology, improve radiologic service to the patient, study the socioeconomic aspects of the practice of radiology, and encourage improved and continuing education for radiologists and allied professional fields.
American Society of Plastic and Reconstructive Surgeons
444 East Algonquin Road
Arlington Heights, IL 60005
1-800-4-PLASTIC
www.plasticsurgery.org
The American Society of Plastic and Reconstructive Surgeons provides a variety of information about plastic surgery, from news on the latest advances and techniques to details of specific surgical procedures, including how to prepare for surgery, the types of anesthesia used and how long recovery takes. In addition, they identify statistics related to plastic surgery as well as the average costs of various procedures.
Breast Cancer Resource Committee
2005 Belmont Road NW, Suite A
Washington, DC 20009
202-463-8040
BCRC's goal is to reduce the incidence and mortality rate from breast cancer among African American women by fifty percent. A primary focus is reaching minority populations and those individuals who have little or no access to healthcare.
Cancer Hope Network
2 North Road
Chester, NJ 07930
1-800-55-CHEMO
www.cancerhopenetwork.org
Cancer Hope Network provides free, confidential, one-on-one support to people with cancer and their families. They match patients with trained volunteers who have themselves undergone a similar experience. Through this venue they are able to provide support and hope, to help patients and families look beyond the diagnosis, cope with treatment, and start living life to its fullest once again.
Cancer Information Service (CIS)
1-800-4-CANCER
www.nci.nih.gov
The Cancer Information Service (CIS) is a program of the National Cancer Institute (NCI), the Nation's lead agency for cancer research. The CIS is a national resource for information and education about cancer and a leader in helping people become active participants in their own health care by providing the latest information on cancer in understandable language. Through its network of fourteen regional offices, the CIS serves the United States, Puerto Rico, and the U.S. Virgin Islands. For 25 years, the Cancer Information Service has provided the latest and most accurate cancer information to patients and families, the public, and health professionals by interacting with people one-on-one through its toll free (1-800-4-CANCER) telephone Information Service, by working with established national, state, and regional organizations to reach minority and uninsured women through its Partnership Program, by participating in research efforts to find the best ways to help people adopt healthier behaviors, and by providing access to NCI information over the Internet.
Cancer Research Institute
681 Fifth Avenue
New York, NY 10022
212-688-7515
1-800-99-CANCER
Supports leading-edge research aimed at developing new methods of diagnosis, treatment, and prevention of cancer.
Judges And Lawyers Breast Cancer Alert (JALBCA)
1369 Madison Avenue, PMB 424
New York, NY 10128
212-289-9720
A group of judges and lawyers in New York joined to create the legal community's response in that state to the breast cancer epidemic among women.
Medicare Hotline
1-800-633-4227
The Medicare Hotline will provide information on coverage, joining Medicare, and address changes.
MyBiopsy.org
The College of American Pathologists has developed a new patient information Web site, http://www.MyBiopsy.org to help women and their loved ones better understand their illness.
The site contains information on some of the most common breast cancer types, as well as more than 20 other cancers and cancer-related conditions. By visiting the site, you will find answers to your questions about breast cancer, a list of available treatment options, questions to ask your doctors, and a glossary of key terms, as well as pictures of normal and diseased breast tissue.
National Alliance of Breast Cancer Organizations (NABCO)
9 East 37th Street, 10th Floor
New York, NY 10016
212-719-0154
1-888-80-NABCO
nabcoinfo@aol.com
www.nabco.org
NABCO is a visible and vocal Patient Advocacy representative addressing the breast cancer needs and concerns of women and men alike in all fronts including in the medical community, the media, and legislation. NABCO provides educational programs, information services, and patient advocacy opportunities. Through NABCO's educational program, they offer the public with the facts about breast health and breast cancer. Information Services has Information Specialists who provide callers with referrals for screening sites and provide information about breast cancer treatment options. Low- to no-cost services.
National Asian Women's Health Organization (NAWHO)
Suite 1111
1611 Telegraph Avenue
Oakland, CA 94612
415-989-9747
www.nawho.org
NAWHO is working to improve the health status of Asian women and families through research, education, leadership, and public policy programs. They have resources for Asian women in English, Cantonese, Laotian, Vietnamese, and Korean. Publications on breast cancer are available.
National Black Leadership Initiative on Cancer
Eastern Regional office at Harlem Cancer Center in New York
506 Lenox Avenue
RHB Pavilion, Room 4078
New York, NY 10037
212-939-8035
The National Black Leadership Initiative was established to serve as an effective means by which knowledge about cancer incidence, treatment and prevention is transferred from the research bench to the African American community in terms that are tangible and applicable to daily living. While the need for more cancer research remains, NBLIC is an acknowledgment of the fact that the advances made through cancer research will be of no relevance unless this information is made available to the African American community in a culturally sensitive manner. Thus the principal aim of the NBLIC is to positively influence the knowledge, attitudes and behaviors of African Americans about cancer, ultimately closing the racial gap in the fight against cancer.
National Breast Cancer Coalition
1707 L Street, NW, Suite 1060
Washington, DC 20036
202-296-7477
www.stopbreastcancer.org
A political action organization that lobbies Congress for more money and better laws for breast cancer research; provides updates on pending legislation and offers advocacy training conferences. Has a local group in every state.
National Breast Cancer Coalition (NBCC)
1707 L St. NW Suite 1060
Washington, DC 20036
202-296-7477
www.stopbreastcancer.org
The National Breast Cancer Coalition is a grassroots advocacy organization dedicated to fighting breast cancer. NBCC aims to eradicate breast cancer through action and advocacy. To achieve its mission, the National Breast Cancer Coalition focuses on three main goals. One is to improve research by increasing appropriations for high quality, peer reviewed research and working within the scientific community to focus research on prevention and finding a cure. Two is to increase access for all women by reducing the barriers that prevent women from having access to high quality treatment and care and to breast cancer clinical trials. Three is to augment influence, by increasing the influence of women living with breast cancer and other breast cancer activists in the decision making that impacts all issues surrounding breast cancer.
National Cancer Institute (NCI )
1-800-4-CANCER
www.cancer.gov
National Coalition for Cancer Survivorship
1010 Wayne Avenue, 5th Fl.
Silver Spring, MD 20910
1-877-622-7937
www.cansearch.org
The National Coalition for Cancer Survivorship (NCCS) is a patient-led advocacy organization working on behalf of this country’s more than 8 million cancer survivors and the millions more touched by this disease. Founded in 1986, NCCS continues to lead the cancer survivorship movement. NCCS' vision is that all cancer survivors, and all those affected by cancer in their lifetime, will know as much as possible about their options for living the best quality of life following a diagnosis, and that they all will have equal opportunity to access treatment and support.
National Food and Drug Administration (FDA)
www.fda.gov
National Hospice and Palliative Care Organization
1700 Diagonal Rd. Suite 300
Alexandria, VA 22314
1-800-658-8898
www.nhpco.org
The National Hospice and Palliative Care Organization is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. The organization advocates for the terminally ill and their families. It also develops public and professional educational programs and materials to enhance understanding and availability of hospice and palliative care; convenes frequent meetings and symposia on emerging issues; provides technical informational resources to its membership; conducts research; monitors Congressional and regulatory activities; and works closely with other organizations that share an interest in end of life care.
National Insurance Consumer Helpline
1-800-942-4242
The National Insurance Consumer Helpline answers any inquiries about insurance.
The National Lymphedema Network
2211 Post Street, Suite 404
San Francisco, CA 94115
1-800-541-3259
www.lymphnet.org
Provides education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.
The Susan G. Komen Breast Cancer Foundation
National Headquarters
5005 LBJ Freeway
Dallas, TX 75244
1-800-I’M-AWARE
www.komen.org
The Susan G. Komen Breast Cancer Foundation was established in 1982 by Nancy Brinker to honor the memory of her sister, Susan G. Komen, who died from breast cancer at the age of 36. Today, the Foundation is an international organization with a network of volunteers working through local Affiliates and Komen Race for the Cure® events to eradicate breast cancer as a life-threatening disease by advancing research, education, screening and treatment. The Foundation runs one of the most innovative, responsive grant programs in breast cancer today. In addition to funding research, the Foundation and its Affiliates fund community-based breast health education and breast cancer screening and treatment projects for the uninsured women. The Susan G. Komen Breast Cancer Foundation also has a breast cancer helpline in which trained volunteers who have been touched by breast cancer in some way answer calls to provide timely and accurate information to callers about breast health and breast cancer in a compassionate and understanding manner. Volunteers can answer questions on a wide variety of topics, including breast health, breast cancer screening techniques, information on current clinical trials, certified mammography locations and support issues.
Y-ME National Breast Cancer Organization
212 W. Van Buren
Chicago, IL 60607
1-800-221-2141 (English Hotline)
1-800-986-9505 (Spanish Hotline)
www.y-me.orgThe mission of Y-ME National Breast Cancer Organization is to decrease the impact of breast cancer, create and increase breast cancer awareness, and to ensure through information empowerment and peer support, that no one faces breast cancer alone. Spanish services available.
Young Survival Coalition
77 Fulton Street, Suite 19K
New York, NY 10038
212-577-6259
www.youngsurvival.org
A group of young breast cancer survivors who wish to give a louder voice for women under the age of 45, since it seems that young women are a silent minority overlooked by the breast cancer community. The majority of the research within the breast cancer community is concentrated around women over the age of 45. Most support groups are attended by women over the age of 45. The legislation around mammograms is focused on women who have Medicare as their primary insurance carrier.
U.S. Department of Health and Human Services
www.hhs.gov